Tag Archives: Jacksonville

Final proton done!


Today’s ringing of the bell marks our last treatment and the end of our proton beam journey here in Jacksonville, Florida! 🙂 39 treatments, 73 days so far (although feels like more!) and we are ready to return home to the UK this weekend.



I can’t thank the University of Florida Proton Therapy Institute’s staff enough for helping us through this long journey.

My backside however is not looking forward to the journey home, I will spare you the pictures of that for now!

Special mentions go to: –

Dr. Ronny Rotondo (Top guy!)



Karen Lopez-Bunk (Top Lady!)


Tracy Edwards (Sorry forgot to get a picture with you so website photo will have to do!)


Bradlee Robbert (Too funny…….for the touuuurrrr)


All members of staff treating in the yellow room (guys I will be shooting you soon on Xbox Live/PS4!) Matt, Al, Heather – Cold Hands, Morgan, Zac & all the others I missed the names of!)

Justin Pigg (My first Radiologist, shame he moved rooms during my treatment!) The nicest guy anyone could meet….ever!


Friends we have met along the way (James, Tyne & boys, Bob & Sabrina, Kim, Chris & girls) hopefully friends for life 🙂

Bob Mower (Fellow Chordoma Patient from Coventry, UK) Only person I have ever met with the same condition as me in the same area! we are definatly 1 in a million!


And last but not least my family, Gem & Lauren have been there every step of the way…..


Looking forward to a well earned rest and Xmas at home with all the family….hopefully early ish 2015 colostomy reversal & the end (for now) of this incredible Chordoma journey.


Hire Car Pick-Up/Proton Centre Tour – Jacksonville, Florida, USA

Had a lie in today after the travelling yesterday!

Called for a cab to pick us up (all cabs paid for by Proton Centre) and take us across town to Enterprise where our hire car was ready to be picked up, also arranged by Proton Centre. Arriving at Enterprise we were greeted by a very nice lady called Karlyn who did all the paperwork and escorted us to our car, we have a Toyota Corolla for now but she said this can be changed during our visit if we wish.

Drove to Proton Centre (well got lost on the way!) for a tour at 4pm, met Bradlee who showed us around (we were the only people for the tour that day) The centre is amazing, well I guess thats what you get when you have to pay for health care! Tour lasted around 1 hour and there were plenty of times to ask questions along the way. We also met Tracy Edwards (our Social Worker) who kitted us out with a Sat-Nav, Hairdryer & Mobile Phone, also met Judy Taylor Holland (Director, Patient Intakes) for a chat, was great to meet all after the last month or so emailing them!


Headed back to apartment after working out sat-nav, we got lost once but made it back in the end!


First meal out we tried McDonalds (original!) Big Mac’s are $2 at the moment! 🙂

The Day Is Here – USA Here We Come!!

Few updates to come – sorry I have left it a while!

Busy day today had no sleep overnight!

BA upgraded us to Club World for our main flight from London Heathrow to Miami result! at least I could sit/lie down in comfort for 9 hours, we enjoyed the lounges at Heathrow (and the bacon butties!) We were even escorted to our gate by a very nice BA employee 🙂 Flight was good and we enjoyed the on-board entertainment & top notch food!

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Arrived at Miami to HEAT! & usual stuff (passport control/collect bags) then to re-check in for the Jacksonville flight. Did not have much time here as we were on-time for the next flight, delayed on the tarmac for 30-40 mins due to storms over Orlando and they were trying to find an alternative route, when we did take off you could see storms along one side of the airplane all the way to Jacksonville. Ride was a bit bumpy in places!

Arrived at Jacksonville and collected bags, at least they all made it! We were collected by a taxi (Limousine) arranged by the Proton Centre, driver was great and very chatty on way back to apartment. Took in some sights on the way back, shame it was dark!

Arrived at apartment, wow better than the pictures. Huge rooms and cool  air at last! I think we will be very comfortable during our stay here!

Note: NHS have refunded our travel costs/Insurance/ESTA costs.