Tag Archives: Chordoma

Final proton done!

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Today’s ringing of the bell marks our last treatment and the end of our proton beam journey here in Jacksonville, Florida! 🙂 39 treatments, 73 days so far (although feels like more!) and we are ready to return home to the UK this weekend.

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I can’t thank the University of Florida Proton Therapy Institute’s staff enough for helping us through this long journey.

My backside however is not looking forward to the journey home, I will spare you the pictures of that for now!

Special mentions go to: –

Dr. Ronny Rotondo (Top guy!)

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Karen Lopez-Bunk (Top Lady!)

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Tracy Edwards (Sorry forgot to get a picture with you so website photo will have to do!)

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Bradlee Robbert (Too funny…….for the touuuurrrr)

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All members of staff treating in the yellow room (guys I will be shooting you soon on Xbox Live/PS4!) Matt, Al, Heather – Cold Hands, Morgan, Zac & all the others I missed the names of!)

Justin Pigg (My first Radiologist, shame he moved rooms during my treatment!) The nicest guy anyone could meet….ever!

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Friends we have met along the way (James, Tyne & boys, Bob & Sabrina, Kim, Chris & girls) hopefully friends for life 🙂

Bob Mower (Fellow Chordoma Patient from Coventry, UK) Only person I have ever met with the same condition as me in the same area! we are definatly 1 in a million!

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And last but not least my family, Gem & Lauren have been there every step of the way…..

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Looking forward to a well earned rest and Xmas at home with all the family….hopefully early ish 2015 colostomy reversal & the end (for now) of this incredible Chordoma journey.

 

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Introducing my new blog!

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Thanks for stopping by and welcome to my new blog! This is just an introductory post so I’ll keep it short and sweet.

I decided to start a blog because I wanted to share my journey with this very rare relentless bone cancer for family, friends, fellow sufferers around the world and anyone who is interested!

Over the next few months I plan to be writing and sharing posts about my life & treatment in the UK & USA. Just to confuse everyone I am also posting updates from the past back to the start of my journey with Chordoma to document for reference purposes.

Many thanks to all involved with my journey so far especially my wonderful wife Gemma & amazing daughter Lauren who without I would not be in the strong place I am today! 🙂

That’s it for now! If you’d like to be kept updated with my posts “Like” this post or subscribe to my blog.