Update – Over Half Way Through

Not many updates recently as mostly the same thing everyday, I am now 23 treatments in with 16 to go!

Slightly more pain in the surgery area so Tramadol are helping with that and redness in the area where treatment is happening (like sunburn, see photo below)

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We have been in Florida 7 weeks today, 4 weeks to go until we will be home (can’t wait now!)

Getting Ready For Session Number 9

Can’t believe it will be 9 already today, just 30 to go! we are just getting up at 12pm 🙂 session is at 16:05 today.

Still feeling a bit stiff/sore so have been given more Tramadol for it, seem to work well. Also using some Aquaphor healing ointment that was recommended to us at the proton centre to keep the skin in good condition.

We had been here for 4 weeks yesterday, seems to go fast & slow if you know what I mean. Now to decide what shops to go to later and where to go for dinner!

 

 

 

5 Sessions Done So Far

I have had 5 sessions so far, all been ok but think I can feel it a little now (feeling stiff) Got a doctors appointment tomorrow before my next session (happens once per week) to keep a check on how things are going.

We also celebrated my daughters 17th birthday ‘American Style’ tonight at The Cheesecake Factory, awesome food again and were joined by our new ‘Scottish Friends’ we have met at the Proton Centre 🙂

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First Proton Session Done!

Had my first session today at UFPTI, all going to plan.

Had a meeting with my nurse & Dr. Ronny first to discuss treatment and the areas to be treated (see pic!) also saw results of MRI from a few weeks ago (no reoccurrence again!) 🙂 They also discussed about skin management and possible sores occurring due to treatment a few weeks down the line.

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Not much to say about the treatment really as you can’t feel anything (and I can’t see anything due to me lying face down!) lots of moving around on the table for positioning and then lots of noises, first one is longer than normal due to positioning and extra checks.

Back tomorrow at 16:20 for next one (38 to go!)

Loving the Florida sunshine!

MRI Scan – Last Visit For Now

Had an MRI Scan (with dye) across the road from the Proton Centre today, this is my last visit for now until treatment starts on the 9th October!

Visited the local shopping mall at St. Johns Town Centre today (just up the road from where we are staying) WOW we will have to make multiple visits as an afternoon only did a 1/3 of it! Unfortunately there is an Apple store there (say no more!)

We had dinner out tonight at ‘The Cheesecake Factory’ awesome food (ribeye to die for), not the cheapest but great service! not enough room for the cheesecake so had that takeout!

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Time for sleep, nothing to get up for now for a few days! (just a Walmart visit for more food/household items tomorrow) and then a relaxing weekend and a catch up on UK TV! (thanks to unblock-us.com & BBC iPlayer/ITV Player lol)

CT Simulation – UFPTI

A bit later today @ 9:30am thankfully!

Had CT Simulation today (including dye) and the body mould made for me, took around an hour or so. Lots of marks put on me for when they line me up on my return in a few weeks! Treatment starts 9th October!!

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Filled up the car with ‘gas’ tonight, $34 from empty (£19!) 🙂

Tried out KFC tonight, what are mash & gravy and biscuits all about? 🙂

First Consultation – UFPTI, Jacksonville, Florida, USA

First Consultation today at 8am! we made it through rush hour traffic and did not get lost!

8:00am Denise Sikes – sign consents
8:30am Karen Lopez-Bunk (RN for Dr. Rotondo)
9:30am Dr. Ronny Rotondo (consultation) Top Guy!

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11:30 Tracy Edwards – Social services
12:00 noon Labs (UF Health Hospital on campus) Bloods

After that we headed back to the apartment for lunch then ventured out to Publix for some food shopping, I did not know you needed a new pair of shoes after each visit to the supermarket here (worn out after all the walking!)

After that we tried out Burger King 🙂 (well you have to try them all!)

Hire Car Pick-Up/Proton Centre Tour – Jacksonville, Florida, USA

Had a lie in today after the travelling yesterday!

Called for a cab to pick us up (all cabs paid for by Proton Centre) and take us across town to Enterprise where our hire car was ready to be picked up, also arranged by Proton Centre. Arriving at Enterprise we were greeted by a very nice lady called Karlyn who did all the paperwork and escorted us to our car, we have a Toyota Corolla for now but she said this can be changed during our visit if we wish.

Drove to Proton Centre (well got lost on the way!) for a tour at 4pm, met Bradlee who showed us around (we were the only people for the tour that day) The centre is amazing, well I guess thats what you get when you have to pay for health care! Tour lasted around 1 hour and there were plenty of times to ask questions along the way. We also met Tracy Edwards (our Social Worker) who kitted us out with a Sat-Nav, Hairdryer & Mobile Phone, also met Judy Taylor Holland (Director, Patient Intakes) for a chat, was great to meet all after the last month or so emailing them!

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Headed back to apartment after working out sat-nav, we got lost once but made it back in the end!

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First meal out we tried McDonalds (original!) Big Mac’s are $2 at the moment! 🙂

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