I feel for this little boys fight with a brain tumour in the UK (as I was also a Southampton Hospital patient) but hopefully with high-profile news like this running on the BBC website it will raise awareness of PBT and rare cancers….
Received our wrist bands and information packs today from Chordoma UK, we are all now wearing them with pride. Well done guys keep up the good work. Donation made!
Please support! http://chordoma-uk.org
Modelled by the wife!
Thanks for stopping by and welcome to my new blog! This is just an introductory post so I’ll keep it short and sweet.
I decided to start a blog because I wanted to share my journey with this very rare relentless bone cancer for family, friends, fellow sufferers around the world and anyone who is interested!
Over the next few months I plan to be writing and sharing posts about my life & treatment in the UK & USA. Just to confuse everyone I am also posting updates from the past back to the start of my journey with Chordoma to document for reference purposes.
Many thanks to all involved with my journey so far especially my wonderful wife Gemma & amazing daughter Lauren who without I would not be in the strong place I am today! 🙂
That’s it for now! If you’d like to be kept updated with my posts “Like” this post or subscribe to my blog.
The long awaited news we have been waiting for: –
1. My MRI scan from 3 weeks ago is showing clear for now! 🙂
2. Funding for PBT has been approved by the NHS! just need the UFPTI (University of Florida Proton Beam Institute) to agree they will treat me and we will be on our way to Jacksonville, Florida for around 3 months!
