Meeting with Mr Duncan Whitwell, Consultant Orthopaedic & Tumour Surgeon and a McMillan Nurse, confirmed from biopsy I have a Chordoma, it has not spread anywhere else as confirmed from the PET scan….phew! Still a shock to find out you have a malignant cancer tumour though at 40 years of age 😦
Was advised things will now start moving, a temporary laparoscopic colostomy will need to be preformed as the tumour is pushing against the bowel (see MRI image in earlier post) and could cause problems with removal of the chordoma, better to do this now as complications during main surgery would not be good. Next meeting will be about colostomy….
Did not know what to expect to be honest but a weird procedure none the less, in principle the same as a CT scan but they inject you with a radioactive tracer that shoots around the body and shows if the cancer has spread to other areas of the body in three dimension. It’s a bit scary when they come in the room to inject you holding a lead box and a radioactive beeper attached to them that goes mad when they administer it!
More worrying is the leaflet afterwards telling you (men) to sit down for a pee for a number of hours after the scan due to you passing radioactive pee! I did try and pee with the light off but it did not glow!! 🙂
First trip to Oxford, meeting with Mr Duncan Whitwell’s Fellow.
Advised an Ultrasound Guided Biopsy needed to be carried out that day, this was scheduled for the afternoon so I waited around. Also advised a PET scan will be required, this is to be carried out ASAP. They will be in touch for next meeting and results….